Following on from our webinar Adult Coeliac Disease Series and Gluten Free Living Cookery Demo, we’ve pulled together some of the key resources and references discussed within the webinar, plus some additional ones on the topic. We have also included useful websites and social media accounts recommended to keep up to date on the subject. If you missed the live webinar, you can watch the recording.

Download our visual summary of the 2020 interim guidelines for diagnosing Coeliac Disease here, and a summary of Cristian’s tips for supporting patients to follow a gluten free diet here.

GUIDELINES

European Society for the Study of Coeliac Disease (ESsCD) guideline for coeliac disease and other gluten-related disorders (2019). Al-Toma et al. European guidelines for coeliac disease

BSG 2020 interim non-biopsy approach (2020). British Society of Gastroenterology (BSG). Updated guidelines for the management of adult coeliac disease (not including non-coeliac gluten sensitivity), including the non-biopsy approach and when to use such an approach

AGA Clinical Practice Update on Diagnosis and Monitoring of Celiac Disease: Changing Utility of Serology and Histologic Measures: Expert Review (2018). Husby et al. Tools for monitoring coeliac disease

Coeliac Disease (2016). National Institute of Health and Clinical Excellence (NICE). Quality standards from NICE including two interactive flowcharts

NICE 2015 coeliac disease guidelines (2015). NICE. Guidelines covering the recognition, assessment and management of coeliac disease in children, young people and adults

BSG guidelines on the diagnosis and management of adult coeliac disease (2014). British Society of Gastroenterology. Guidelines covering the diagnosis and management of adult coeliac disease

 

RESEARCH PAPERS

Non-biopsy diagnosis of coeliac disease: increased diagnosis and how dietitians can help (2021). British Journal of General Practice (BJGP). Publication highlighting the new diagnostic guidelines for coeliac disease

Epidemiology, Presentation, and Diagnosis of Celiac Disease (2021). Lebwohl and Rubio-Tapia. The diagnostic process for coeliac disease, including use of the non-biopsy method

Gluten Immunogenic Peptides (GIP) Point-of-Care Urine Test in Coeliac Disease Follow-up before and during the COVID-19 Lockdown in Italy (2021). New method for monitoring coeliac disease – the GIP test

Wheat consumption and prevalence of celiac disease: Correlation from a multilevel analysis (2021).  Bradauskiene et al. Study looking into the link between eating wheat and prevalence of coeliac disease country-wide

Accuracy of a no-biopsy approach for the diagnosis of coeliac disease across different adult cohorts (2020). Penny et al. Study supporting the supports the use of a no-biopsy approach for the diagnosis of adult CD

Non-Responsive Coeliac Disease (NRCD): A Comprehensive Review from the NHS England National Centre for Refractory Coeliac Disease (2020). Penny et al. A review providing an overview of the causes of NRCD in adults

Facilitators and barriers to adherence to gluten-free diet among adults with celiac disease: a systematic review (2020). Abu-Janb and Janna. The challenges and facilitators following a gluten free diet

Management of celiac disease in daily clinical practice (2019). Lebwohl et al. A clinical guide and to summarise the most recent clinical progress in coeliac disease research

Toward New Paradigms in the Follow Up of Adult Patients With Celiac Disease on a Gluten-Free Diet (2019). Pinto-Sanchez and Bai. A review of the literature on the current strategies to follow up patients with coeliac disease

A simple validated gluten-free diet adherence survey for adults with celiac disease (2019). Leffler et al. Development of a valid and reliable Coeliac Dietary Adherence Test (CDAT)

What is refractory coeliac disease and how is it diagnosed? An insight into current research (2019). Dr. Schär. This article presents an overview of current understanding on refractory coeliac disease and future developments in this area

Coeliac Disease (2019). Lindfors et al. Article into the presentation of coeliac disease, treatment and the difficulties with diagnosis

Celiac Disease: A Review of Current Concepts in Pathogenesis, Prevention, and Novel Therapies (2018). Tye-Din et al. Study highlighting the current thinking behind the causes and treatment of coeliac disease (includes useful diagrams for the pathogenesis)

Indications and Use of the Gluten Contamination Elimination Diet for Patients with Non-Responsive Celiac Disease (2017). Leonard et al. Use of a modified gluten free diet

Celiac Disease Histopathology Recapitulates Hedgehog Downregulation, Consistent with Wound Healing Processes Activation (2015). Lauwers et al. Study looking into the nature of intestinal crypt hyperplasia and involvement of Hedgehog (Hh)/BMP3 in coeliac disease diagnosis

Patient perception of treatment burden is high in celiac disease compared with other common conditions (2014). Shah et al. A comparison of patient perceived disease burden

A score that verifies adherence to a gluten-free diet: a cross-sectional, multicentre validation in real clinical life (2012). Biaggi et al. The use of a questionnaire as a reliable and simple method to verify compliance to a gluten-free diet

A prospective, double-blind, placebo-controlled trial to establish a
safe gluten threshold for patients with celiac disease (2007). Catassi et al. Study looking into how much gluten it takes to cause gut damage

PRACTICAL RESOURCES AND USEFUL ARTICLES

Coeliac Disease: an underdiagnosed condition that is on the rise worldwide (2021). Cristin Costas Batlle for the British Dietetic Association. Article into the challenges of getting accurate diagnosis figures for coeliac disease

Policy statement: Gluten Free Foods on Prescription (2021). British Dietetic Association. Policy statement around access to staple gluten free foods on prescription considering National prescribing guidelines

Gluten Free Living (2021). Nutrition and Diet Resources UK. Leaflet available to purchase – a comprehensive guide to gluten-free living with coeliac disease or dermatitis herpetiformis. Includes food listings, practical tips and wider dietary considerations. Developed with the support of Coeliac UK

Dietitian Led Coeliac Clinics (2020). Dietetics Digest Podcast. Podcast episode with Cristian Costas explaining about dietetic led clinics for coeliac disease patients

Coeliac Disease and a Gluten Free DietIrish Nutrition and Dietetic Institute. Irish factsheet for the management of coeliac disease

Coeliac Disease Factsheet. Guts UK Charity. Factsheet all about the management of Coeliac Disease, designed for patients

Coeliac UK Resources:

Dr Schäer Expert’s Area – Sign up to the expert area for access to many resources including newsletters and webinars

Coeliac Disease and Osteoporosis (2017). National Osteoporosis Society. The link between coeliac disease and osteoporosis including advice on bone density scans

Recipe Cards from the Gluten Free Living Cookery Demo (2022)

Lentil and Bean Chilli

Dr Schär Veggie Pizza

SOCIAL MEDIA

@cristiancostasb (Twitter) and @coeliac_dietitian (Instagram) for Cristian Costas Batlle

@Coeliac_UK (Twitter) for Coeliac UK (Website) for Coeliac UK

@bda_gastro (Twitter) for the British Dietetic Association’s Gastroenterology Group

@GutsCharityUK (Twitter), gutsukcharity (Instagram) and Guts UK Charity (Website) for Guts Charity UK – UK’s charity for digestive health

@DSI_UK (Twitter) for the Dr Schäer healthcare professional resource specialising in gluten-related disorders

@BritSocGastro (Twitter) and British Society of Gastroenterology (Website) for the British Society of Gastroenterology

Do you have any recommended resources for this topic? If so, please do comment below